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   Children's Publishing :: Prof. Resources :: Alex: The Fathering Of A Preemie ACP101

  Alex: The Fathering Of A Preemie ACP101 #239
Alex: The Fathering Of A Preemie ACP101  Jeff Simpson saw his son get a spinal tap without anesthesia (it isn't given to micro-preemies) and three times witnessed Alex stop breathing - once on his lap. He and his wife were in the hospital every day, and there they discovered not only how far the science of saving preemies has advanced but how far it hasn't, and how far healthcare and other professionals need to go to understand what parents go through when their infant lives in the hospital. The Simpsons got a crash course in life behind the billboard of medical miracle, and learned how the care of preemies can greatly differ, and, perhaps most important, how patients' families must learn to be consumers when trying to find that care. What keeps a family going when a child spends a year in the hospital?

In compelling prose, the author traces the life of his child from birth to kindergarten: four wings in two hospitals; coming home with a roomful of medical gear and round-the-clock drugs and nursing; the gains and downturns of home therapy through Early Intervention; finding and prospering in a special-needs preschool; a diagnosis of autism; and the ongoing battle to give Alex a fair shot at childhood, and at life.

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